Our Story

I met my husband, Nicholas when I was 18 years old.

We met at an easter get-together at my Grandma's house.

He was a youth pastor, and he hypnotized me in every way- he was a listener, he loved Jesus, and he loved me! We fell in love quickly and we were married the following year in May.

Four months after we were married, we found out that we were expecting Judah! Judah was born on April 29th, 2010. He was 8lbs and 3oz of adorableness, the cutest little newborn I ever laid eyes on. He looked just like his Daddy from the beginning, all the nurses and doctors joked about how he came out with the same hairdo as his Daddy had.

Judah was diagnosed with laryngomalacia, grade 4 after 4 months of struggling to eat and gain weight. He ended up having a suppraglottyplasty (or some name of the likeness) and finally was able to eat, only to develop pneumonia from aspiration. He then was fed entirely by an ng tube for the next 3-4 months... and finally was found to have a tight tongue! He had his tongue cord clipped in a simple in office procedure, and finally he could drink a bottle without aspirating the liquid into his lungs. He had an oral aversion at this point, but somehow we worked through it and he is a great eater today! He is two years old now.

When Judah turned 8 months old, we found out we were expecting Gabe.

At our 20 week ultrasound, we found out that Gabe had a severe congenital (present at birth) heart defect known as Hypoplastic Left Heart Syndrome. We traveled from Boise, Idaho to Seattle, Washington where my husband's family lives to give Gabe the best care available.

Soon, it was found that not only did Gabe have HLHS, but he also had an AV Canal Defect.

He was born on August 28th, 2011 at 2:20am weighing in at 7lbs 11oz. He was the sweetest, pinkest little boy, and he was diagnosed at birth with Downs Syndrome (Trisomy 21).

Gabe had a long road before his first surgery at 15 days old. He had a Norwood Procedure after much pressure from our doctors to not put him through surgery... We were told we would lose him in the end and it was pointless.

Somehow, we had hope for our little guy, and we are so glad that we did!

We were contacted through my blog by a woman named Kim who had a son named Will with similar heart issues as well as Down's Syndrome. She told us about Dr. Pedro del Nido in Boston, Massachusetts who was giving babies like our Gabe full hearts!

We were amazed, astounded, hopeful and we immediately contacted Boston to see if this could be done for our son.

Long story short, we are now in Boston. Gabe has had one procedure to close part of his AVSD in order to direct bloodflow towards his left pumping chamber in order to grow it to a sustainable size.. in hopes of a full heart repair!

It has been a rough journey since this surgery and Gabe is scheduled to have another surgery soon to help with some heart anatomy issues in order to help him through until his full repair. We are so very blessed and so lucky to be here in Boston.

Thank you for reading our story, and please click the links to keep up with Gabe's story.


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